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Table 2 List of variables of the follow-up medical and socio-demographic form (follow-up MSD form)

From: French database of children and adolescents with Prader-Willi syndrome

Variables of the follow-up medical and socio-demographic form (follow-up MSD form)

Patient identification

   - Identification number, date, date of initial visit

   - Changes in familial medical history and familial situation since previous visit

Auxological and clinical measurements

   Height, weight, BMI, head circumference, waist, hip, pubertal stage, pulse, blood pressure, right- or left-handed

Medical complications, operations since previous visit

Psychomotor development

   schoolar, extra-schoolar activities

Treatments

   GH, treatment for hypogonadism, hypothyroidism, other

Management

   Nutritional management, physiotherapy, speech and language management, psychomotricity, ophthalmology, orthopaedic, psychological management, psychiatric management, other specific management

Behavioural troubles

   IQ, Food-related troubles, anxiety, depression, obsessive compulsive disorder, psychotic aspects

Biological data

Imaging data