From: French database of children and adolescents with Prader-Willi syndrome
Variables of the follow-up medical and socio-demographic form (follow-up MSD form) |
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Patient identification |
   - Identification number, date, date of initial visit |
   - Changes in familial medical history and familial situation since previous visit |
Auxological and clinical measurements |
   Height, weight, BMI, head circumference, waist, hip, pubertal stage, pulse, blood pressure, right- or left-handed |
Medical complications, operations since previous visit |
Psychomotor development |
   schoolar, extra-schoolar activities |
Treatments |
   GH, treatment for hypogonadism, hypothyroidism, other |
Management |
   Nutritional management, physiotherapy, speech and language management, psychomotricity, ophthalmology, orthopaedic, psychological management, psychiatric management, other specific management |
Behavioural troubles |
   IQ, Food-related troubles, anxiety, depression, obsessive compulsive disorder, psychotic aspects |
Biological data |
Imaging data |