TY - JOUR AU - Gaff, C. L. AU - Clarke, A. J. AU - Atkinson, P. AU - Sivell, S. AU - Elwyn, G. AU - Iredale, R. AU - Thornton, H. AU - Dundon, J. AU - Shaw, C. AU - Edwards, A. PY - 2007 DA - 2007// TI - Process and outcome in communication of genetic information within families: a systematic review JO - Eur J Hum Genet VL - 15 UR - https://doi.org/10.1038/sj.ejhg.5201883 DO - 10.1038/sj.ejhg.5201883 ID - Gaff2007 ER - TY - JOUR AU - Landsbergen, K. AU - Verhaak, C. AU - Kraaimaat, F. AU - Hoogerbrugge, N. PY - 2005 DA - 2005// TI - Genetic uptake in BRCA-mutation families is related to emotional and behavioral communication characteristics of index patients JO - Fam Cancer VL - 4 UR - https://doi.org/10.1007/s10689-004-7991-2 DO - 10.1007/s10689-004-7991-2 ID - Landsbergen2005 ER - TY - JOUR AU - Clayton, C. AU - Hall, P. AU - Mackinnon, M. PY - 1993 DA - 1993// TI - Family screening for genetic haemochromatosis. What is the most effective method of contact? JO - Med J Aust VL - 159 ID - Clayton1993 ER - TY - JOUR AU - Daly, M. B. AU - Barsevick, A. AU - Miller, S. M. AU - Buckman, R. AU - Costalas, J. AU - Montgomery, S. AU - Bingler, R. PY - 2001 DA - 2001// TI - Communicating genetic test results to the family: a six-step, skills-building strategy JO - Fam Community Health VL - 24 UR - https://doi.org/10.1097/00003727-200110000-00004 DO - 10.1097/00003727-200110000-00004 ID - Daly2001 ER - TY - JOUR AU - Claes, E. AU - Evers-Kiebooms, G. AU - Boogaerts, A. AU - Decruyenaere, M. AU - Denayer, L. AU - Legius, E. PY - 2003 DA - 2003// TI - Communication with close and distant relatives in the context of genetic testing for hereditary breast and ovarian cancer in cancer patients JO - Am J Med Genet A VL - 116A UR - https://doi.org/10.1002/ajmg.a.10868 DO - 10.1002/ajmg.a.10868 ID - Claes2003 ER - TY - JOUR AU - McConkie-Rosell, A. AU - Robinson, H. AU - Wake, S. AU - Staley, L. W. AU - Heller, K. AU - Cronister, A. PY - 1995 DA - 1995// TI - Dissemination of genetic risk information to relatives in the fragile X syndrome: Guidelines for genetic counselors JO - Am J Med Genet VL - 59 UR - https://doi.org/10.1002/ajmg.1320590406 DO - 10.1002/ajmg.1320590406 ID - McConkie-Rosell1995 ER - TY - JOUR AU - Dancyger, C. AU - Wiseman, M. AU - Jacobs, C. AU - Smith, J. A. AU - Wallace, M. AU - Michie, S. PY - 2011 DA - 2011// TI - Communicating BRCA1/2 genetic test results within the family: a qualitative analysis JO - Psychol Health VL - 26 UR - https://doi.org/10.1080/08870446.2010.525640 DO - 10.1080/08870446.2010.525640 ID - Dancyger2011 ER - TY - JOUR AU - Mellon, S. AU - Berry-Bobovski, L. AU - Gold, R. AU - Levin, N. AU - Tainsky, M. A. PY - 2006 DA - 2006// TI - Communication and decision-making about seeking inherited cancer risk information: Findings from female survivor-relative focus groups JO - Psychooncology VL - 15 UR - https://doi.org/10.1002/pon.935 DO - 10.1002/pon.935 ID - Mellon2006 ER - TY - JOUR AU - Kenen, R. AU - Ardern-Jones, A. AU - Eeles, R. PY - 2004 DA - 2004// TI - We are talking, but are they listening? Communication patterns in families with a history of breast/ovarian cancer (HBOC) JO - Psychooncology VL - 13 UR - https://doi.org/10.1002/pon.745 DO - 10.1002/pon.745 ID - Kenen2004 ER - TY - JOUR AU - Clarke, A. AU - Richards, M. AU - Kerzin-Storrar, L. AU - Halliday, J. AU - Young, M. A. AU - Simpson, S. A. AU - Featherstone, K. AU - Forrest, K. AU - Lucassen, A. AU - Morrison, P. J. AU - Quarrell, O. AU - Stewart, H. PY - 2005 DA - 2005// TI - Genetic professionals’ reports of nondisclosure of genetic risk information within families JO - Eur J Hum Genet VL - 13 UR - https://doi.org/10.1038/sj.ejhg.5201394 DO - 10.1038/sj.ejhg.5201394 ID - Clarke2005 ER - TY - JOUR AU - Wilson, B. J. AU - Forrest, K. AU - van Teijlingen, E. R. AU - McKee, L. AU - Haites, N. AU - Matthews, E. AU - Simpson, S. A. PY - 2004 DA - 2004// TI - Family communication about genetic risk: the little that is known JO - Community Genet VL - 7 ID - Wilson2004 ER - TY - JOUR AU - Forrest, K. AU - Simpson, S. A. AU - Wilson, B. J. AU - van Teijlingen, E. R. AU - McKee, L. AU - Haites, N. AU - Matthews, E. PY - 2003 DA - 2003// TI - To tell or not to tell: barriers and facilitators in family communication about genetic risk JO - Clin Genet VL - 64 UR - https://doi.org/10.1034/j.1399-0004.2003.00142.x DO - 10.1034/j.1399-0004.2003.00142.x ID - Forrest2003 ER - TY - JOUR AU - McClaren, B. J. AU - Aitken, M. AU - Massie, J. AU - Amor, D. AU - Ukoumunne, O. C. AU - Metcalfe, S. A. PY - 2013 DA - 2013// TI - Cascade carrier testing after a child is diagnosed with cystic fibrosis through newborn screening: investigating why most relatives do not have testing JO - Genet Med VL - 15 UR - https://doi.org/10.1038/gim.2012.175 DO - 10.1038/gim.2012.175 ID - McClaren2013 ER - TY - CHAP AU - Gaff, C. AU - Galvin, K. AU - Bylund, C. ED - Gaff, C. ED - Bylund, C. PY - 2010 DA - 2010// TI - Facilitating Family Communication About Genetics in Practice BT - Family Communication About Genetics Theory and Practice PB - Oxford University Press CY - New York ID - Gaff2010 ER - TY - JOUR AU - Chivers Seymour, K. AU - Addington-Hall, J. AU - Lucassen, A. M. AU - Foster, C. L. PY - 2010 DA - 2010// TI - What facilitates or impedes family communication following genetic testing for cancer risk? A systematic review and meta-synthesis of primary qualitative research JO - J Genet Couns VL - 19 UR - https://doi.org/10.1007/s10897-010-9296-y DO - 10.1007/s10897-010-9296-y ID - Chivers Seymour2010 ER - TY - JOUR AU - d’Agincourt-Canning, L. PY - 2001 DA - 2001// TI - Experiences of genetic risk: disclosure and the gendering of responsibility JO - Bioethics VL - 15 UR - https://doi.org/10.1111/1467-8519.00234 DO - 10.1111/1467-8519.00234 ID - d’Agincourt-Canning2001 ER - TY - JOUR AU - Forrest, L. E. AU - Delatycki, M. B. AU - Skene, L. AU - Aitken, M. PY - 2007 DA - 2007// TI - Communicating genetic information in families–a review of guidelines and position papers JO - Eur J Hum Genet VL - 15 UR - https://doi.org/10.1038/sj.ejhg.5201822 DO - 10.1038/sj.ejhg.5201822 ID - Forrest2007 ER - TY - JOUR AU - Suthers, G. K. AU - Armstrong, J. AU - McCormack, J. AU - Trott, D. PY - 2006 DA - 2006// TI - Letting the family know: balancing ethics and effectiveness when notifying relatives about genetic testing for a familial disorder JO - J Med Genet VL - 43 UR - https://doi.org/10.1136/jmg.2005.039172 DO - 10.1136/jmg.2005.039172 ID - Suthers2006 ER - TY - JOUR AU - Forrest, L. E. AU - Burke, J. AU - Bacic, S. AU - Amor, D. J. PY - 2008 DA - 2008// TI - Increased genetic counseling support improves communication of genetic information in families JO - Genet Med VL - 10 UR - https://doi.org/10.1097/GIM.0b013e318164540b DO - 10.1097/GIM.0b013e318164540b ID - Forrest2008 ER - TY - JOUR AU - Roshanai, A. H. AU - Nordin, K. AU - Rosenquist, R. PY - 2007 DA - 2007// TI - Does enhanced information at genetic counseling improve the knowledge, risk perception and negotiation of information to relatives? A randomized study JO - Psychooncology VL - 16 ID - Roshanai2007 ER - TY - JOUR AU - Boutron, I. AU - Moher, D. AU - Altman, D. G. AU - Schulz, K. F. AU - Ravaud, P. AU - Group, C. PY - 2008 DA - 2008// TI - Extending the CONSORT statement to randomized trials of nonpharmacologic treatment: explanation and elaboration JO - Ann Intern Med VL - 148 UR - https://doi.org/10.7326/0003-4819-148-4-200802190-00008 DO - 10.7326/0003-4819-148-4-200802190-00008 ID - Boutron2008 ER - TY - JOUR AU - Craig, P. AU - Dieppe, P. AU - Macintyre, S. AU - Michie, S. AU - Nazareth, I. AU - Petticrew, M. PY - 2008 DA - 2008// TI - Developing and evaluating complex interventions: the new Medical Research Council guidance JO - BMJ VL - 337 UR - https://doi.org/10.1136/bmj.a1655 DO - 10.1136/bmj.a1655 ID - Craig2008 ER - TY - JOUR AU - Veach, P. M. AU - Bartels, D. M. AU - Leroy, B. S. PY - 2007 DA - 2007// TI - Coming full circle: a reciprocal-engagement model of genetic counseling practice JO - J Genet Couns VL - 16 UR - https://doi.org/10.1007/s10897-007-9113-4 DO - 10.1007/s10897-007-9113-4 ID - Veach2007 ER - TY - CHAP AU - Gaff, C. AU - Hodgson, J. PY - 2014 DA - 2014// TI - A genetic counseling intervention to facilitate family communication about inherited conditions BT - J Genet Couns ID - Gaff2014 ER - TY - JOUR AU - Gulliford, M. C. AU - Ukoumunne, O. C. AU - Chinn, S. PY - 1999 DA - 1999// TI - Components of variance and intraclass correlations for the design of community-based surveys and intervention studies: data from the Health Survey for England 1994 JO - Am J Epidemiol VL - 149 UR - https://doi.org/10.1093/oxfordjournals.aje.a009904 DO - 10.1093/oxfordjournals.aje.a009904 ID - Gulliford1999 ER - TY - JOUR AU - Brett, G. R. AU - Metcalfe, S. A. AU - Amor, D. J. AU - Halliday, J. L. PY - 2012 DA - 2012// TI - An exploration of genetic health professionals' experience with direct-to-consumer genetic testing in their clinical practice JO - Eur J Hum Genet VL - 20 UR - https://doi.org/10.1038/ejhg.2012.13 DO - 10.1038/ejhg.2012.13 ID - Brett2012 ER - TY - STD TI - The pre-publication history for this paper can be accessed here:http://www.biomedcentral.com/1471-2350/15/33/prepub UR - http://www.biomedcentral.com/1471-2350/15/33/prepub ID - ref27 ER -