Generation Scotland: the Scottish Family Health Study; a new resource for researching genes and heritability

BMC Medical Genetics

Table 2 Healthcare datasets with which GS:SFHS data will be linked.

DATASET	DESCRIPTION	COVERAGE	DATES
CHI dataset	NHS number (unique personal identifier) (Includes DOB/death)	Scotland wide, currently 5.6M people	1980-present
ISD SMR1 record	All hospital admissions – ICD9/10 coded	Scotland wide, currently 750k p.a.	1980-present
MEMO- Rx	Regional prescribing of all pharmacies	Tayside wide	1993-present
Mobile Eye Screening	Mobile digital retinal photographic unit	All GPs; total 33,000.	1991-present
Tayside Biochemistry	All biochemical investigations	Tayside wide, 25M data items	1993-present
Retinal Laser Clinic	Regional laser clinic	Tayside	1998-present
DARTS Validation	All diabetes patients	Tayside wide-all 78 GP Practices	1994-present
Cardiac outcomes	Coronary Care Unit admissions, echocardiography, Exercise Tolerant Tests, etc.	Tayside	1997-present
Walker Database	Tayside birth records from 1952–66	Tayside, 50k births; 73 data items	1952–1966
ISD SMR 2, 6, 10,11	Maternity, cancer, neonatal, child health records	Tayside	1980-present
GPASS data	Primary care clinical and prescribing data	Being rolled out to 65 GP practices	ongoing
HEARTS	All cardiac admissions	Tayside wide	1996-present
Endoscopy	All clinic data	Tayside	1990-present
Stroke	All Tayside strokes	Tayside	1993-present
Asthma	A cohort of 4,500 asthma patients	Tayside	1990-present

Note. Although some of these are currently only available in the Tayside region, it is intended that the capacity will be exported across the rest of Scotland as part of this study.

ISSN: 1471-2350